EP 415: Founder Norma Loeb of the Lewy Body Resource Center Discusses Lewy Body Dementia and How They Can Help You

My guest today is the founder and executive director of the Lewy body Resource Center.

Norma’s knowledge and experience with Lewy body dementia began with the personal care of her mother, Lillian, who had LBD for many years.

Norma has been facilitating the only New York Metro area LBD caregivers support groups since 2008.  She also leads a national group for people living with LBD which has been lauded. 

She served on the board of directors of the Lewy Body Dementia Association for three years before launching the LBD Resource Center in 2016 to provide much needed support and resources on more personal and connective levels.

Norma worked as executive assistant to the CFO at The New York Times Company for over 20 years. While there, she served as chairperson of the work/life committee of The New York Times’ women’s affinity group and initiated and ran their eldercare support group.

Her expertise working with the top executives at The Times, as well as her managerial experience as executive director and a co-founder of What BETTER Looks Like, a nonprofit organization which partners with communities to help individuals imagine, articulate, and create visions for a better world, has prepared her to lead the LBD Resource Center which is very dear to her heart.

Ladies and gentlemen, Lewy body dementia (LBD) is the second most common form of progressive dementia, affecting more than 1.4 million Americans. Because LBD comes with a host of physical, cognitive and behavioral symptoms, it often mimics Alzheimer’s disease, Parkinson’s disease or a psychiatric disorder.

As a result, it is widely misdiagnosed. Even as diagnoses increase, resources for people with LBD and their families still remain extremely limited. Citing this lack of resources and assistance, the Lewy Body Dementia Resource Center was founded to provide much needed services and support for people with LBD and their loved ones.

Go to LewybodyResourceCenter.org or LDBNY.org for more information.

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